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2027 Capturing the impact of Facioscapulohumeral Muscular Dystrophy (FSHD) on Health-related Quality of Life (HRQoL): a systematic review of the reliability and validity of existing self-report instruments using COSMIN Jill Carlton 1 , Philip Powell 1 , S Frances 1 , Claire Williams 1 , Anthea Sutton 1 , Jonathan Street 1 , Channa Hewamadduma 1 , Jill Carlton 1 1 University of Sheffield, Sheffield, UK Journal of Patient-Reported Outcomes 2026 , 10(Suppl 1) :2027 Aims Facioscapulohumeral muscular dystrophy (FSHD) is a rare genetic muscle wasting condition causing progressive weakness
Some report incorporating protein powders into their diets or relying on high-protein snacks like beef jerky
Patients with poorly controlled diabetes may initially experience fatigue as blood glucose levels normalise
Understanding why results vary, and what to do about it, saves patients from unnecessary frustration and premature discontinuation
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[1] The mechanism of action of Saxenda involves slowing gastric emptying, which means food remains in the stomach for longer periods
After utilizing these tools, the authors reviewed and edited the content as needed and took full responsibility for the final content of the publication
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